RAKEIORA

Brief description:

The aim of the Rakeiora Study is to develop an initial, proof-of-concept, cancer genomic research infrastructure that will be the foundation for a scalable national cancer genomics research infrastructure.

Objectives:

1. To establish protocols and processes for managing genomic medicine research data, co-designed and co-led with/by Māori.
2. To design a prototype cancer genomic medicine research information technology (IT) platform.
3. Using genomic and health information from participants, test the prototype cancer genomic research infrastructure and demonstrate ability to: link genomic data with health data, usefulness across a range of research problems, alignment with Māori values including data sovereignty, researcher credentialing and research project governance, security, privacy and scalability.

This study plans to recruit 100 participants with any type of cancer. A cancer tissue sample (stored tissue sample or blood sample) and a normal tissue sample (blood sample or nail clipping/cheek swab) will be collected from each participant.